Jesy Nelson struggled to hold back tears as she spoke about a cause that has become deeply personal since her twin daughters were diagnosed with spinal muscular atrophy (SMA).
The former Little Mix star shared an emotional video with supporters this week, describing what she called an unfair "postcode lottery" that could determine whether some babies receive life-changing treatment early enough to avoid severe complications.
For Nelson, the issue goes far beyond politics. It is about families like her own.
The singer has spent much of this year raising awareness about SMA after revealing that her daughters, Ocean and Story, were diagnosed with Type 1 SMA, one of the most serious forms of the rare genetic condition. The disorder affects muscle strength and can impact movement, breathing and swallowing if left untreated.
In her latest appeal, Nelson expressed frustration that newborn SMA screening is expected to begin rolling out in parts of England later this year, but not everywhere.
According to campaigners, the initial programme is expected to cover around 72% of England, meaning some newborns could miss out on early diagnosis depending on where they are born. Areas reportedly not included in the first phase include cities such as Leeds, Liverpool, Bristol and Oxford.
Fighting back emotion, Nelson questioned why a child's future should depend on their postcode.
Her campaign has already gathered significant public support. A petition calling for universal newborn screening for SMA attracted more than 150,000 signatures, helping secure a parliamentary debate on the issue.
Medical charities and SMA advocacy groups have argued for years that earlier testing can dramatically improve outcomes. Experts say treatment is most effective when it begins before symptoms become severe, which is why campaigners have pushed for SMA to be included in routine newborn screening programmes.
Ahead of the debate, Nelson also shared a glimpse of the daily reality faced by her family, posting images of the spinal braces worn by her daughters and reminding supporters why the campaign matters so much to her.
While she acknowledged that the planned rollout marks important progress, Nelson insisted the job is not finished until every baby in England has access to the same screening regardless of where they are born.
The singer's campaign has helped bring national attention to an issue that many families and charities have been raising for years. Now, supporters hope the growing spotlight will lead to wider access to newborn testing and earlier treatment for future generations affected by SMA.